The sky's the limit.
Wow, I think that was the most I’ve ever written on a chemo day. Surprised I stayed awake that long. Today’s ambition was to tell more about the decision to go with the substitute medical oncologist lung specialist, we’ll see how much energy I have to tell the story. My first reaction, after finding absolutely zero research about the guy […]
Continue reading »6:30AM: Well, here we go, appointment at 11AM. Last round of chemo this afternoon, or no? I change my vote. Let’s get it over with. 150 days. How long is that? Five months. Exactly. How about that. 8:30PM: I had to decide whether to do the last chemo or not today. The new doctor (Agarwal, the lung specialist) wasn’t making […]
Continue reading »I hit my head yesterday. Hard. Under my desk, turning the aquarium back on after changing the fish water. And as I was standing up after hitting my head, I almost blacked out, and was wobbling there and started to sink to the floor with a groan. Mark came running over from his office (good thing he was back in […]
Continue reading »I take it back, we know more today. I got a phone call from Sutter today. Lombardi is leaving the Sutter practice, and they’ve assigned me to a new doctor for Monday. So some doctor who only knows what’s written about me in a chart is now going to be making a decision that will forever affect either my risk […]
Continue reading »You know, I had meant to do all this writing today and get “caught up” on my blog, but I just feel crummy. And it’s a busy day relatively speaking, I’m waiting on the sac pharmacy place to deliver my emend, which is always stressful because they’ve missed almost every delivery they’ve committed to, and the emend is ridiculously important […]
Continue reading »So, good news on the genetic testing front! They tested for BRCA 1 sequencing and a “5-site rearrangement panel” and for BRCA 2 sequencing, and no mutations were detected anywhere. Which basically means that I have a normal risk level of a new breast cancer or of ovarian cancer for someone with the rest of my profile (meaning, for someone […]
Continue reading »Well, ok, so let’s blame it on chemo brain, but when I was looking at my test results online, the CBC results specifically that is, I was actually looking at the results from my last blood draw, which was the Friday before my last chemo infusion. In other words, the results were from a blood draw when I should have […]
Continue reading »We had a bit of a scare last week, well, not really a scare, but on Friday I finally called my doctor’s office because this anxiety thing was just too excessive and there just had to be something they could tweak with the meds to make it more tolerable and less freaky for me. But after I talked with the […]
Continue reading »This is so cool. One of my old friends in San Jose whom I haven’t seen in at least a couple years was in an all-weekend event run/walk for the cure last weekend, it was a 3-day Susan G. Koman thing. They do these rather intense run/walk events 10K+, some multi-day, all to raise funds and awareness to fight breast […]
Continue reading »“Cancer, Day XYZ.” It’s like Star Date [something something] from some sci fi show that I’m too young to understand. But I can’t imagine actually titling each of these little daily entries, oh and tagging, don’t get me going on tagging, I just can’t seem to get the hang of adding those to make later blog searching easier. Besides, overall […]
Continue reading »So here my parents were supposed to leave South Dakota today, Saturday, to start their drive out here to visit, but they called Friday and were already in Nebraska somewhere, and today they drove all the way to Nevada (Winnemucca, I think) so they’re sure to be at Volcanoville on Sunday. I guess that’s not sooo much earlier than what […]
Continue reading »I finally felt up to giving Gary an update for Chain today, though there’s not much good news from me right now. But most of this blog is about stuff that has to do with getting back to Chain or what state I’m in for getting back to work in radiation or not. Things have gotten cumulatively more degenerative (which […]
Continue reading »Cue tears. I had absolutely no motivation for going to yoga tonight, it was all I could do to encourage Mark to go to his yoga class and “take care of my caregiver,” so by the time all that emotional energy was spent there wasn’t anything left to encourage myself to go to my own yoga class and here I […]
Continue reading »What a singularly strange experience, to be able, in your thirties, to live in a body of limitations for double and triple your actual age. And to go thought it quickly, in a matter of weeks, not decades. Shocker. Hard to handle. Depressing. Nothing works. Can’t see. Can’t type. Can’t write. Can’t think. Bowels don’t work, either flush everything upon […]
Continue reading »I actually came across some good, brief definitions of some of the side effects I’ve been having, and I thought the brevity may be useful to other women trying to get their arms around this whole wide mess. It’s continually shocking to me that any of these side effects can manifest themselves as debilitatingly as they do. Chemo Brain: Difficulty […]
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